Serveur d'exploration sur la maladie de Parkinson

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The suitability of patient‐based measures in the field of Parkinson's disease: A systematic review

Identifieur interne : 000F28 ( Main/Exploration ); précédent : 000F27; suivant : 000F29

The suitability of patient‐based measures in the field of Parkinson's disease: A systematic review

Auteurs : Brenda L. Den Oudsten [Pays-Bas] ; Guus L. Van Heck [Pays-Bas] ; Jolanda De Vries [Pays-Bas]

Source :

RBID : ISTEX:CEBFC20D30CECA1C75C24A23A0F7461E05E949F1

English descriptors

Abstract

The aim of this study is to appraise the suitability of current quality of life (QOL) questionnaires for use in the field of Parkinson's disease (PD). Computerized bibliographic databases were screened for publications from 1960 to December 2006. Predefined selection criteria were used to identify QOL questionnaires in PD studies. Two investigators independently assessed and, subsequently, agreed on a set of multidimensional generic and PD‐specific QOL questionnaires. Data were extracted concerning the internal structure, reliability, validity, and responsiveness of the included questionnaires. Sixteen‐questionnaires were found, of which 14 questionnaires were included (six generic measures and eight PD‐specific). In general, the psychometrics of all the questionnaires were adequately described. Sensitivity to change, however, has been reported for only a limited number of instruments. Almost all included questionnaires used QOL as a keyword, but only two questionnaires fitted the broad QOL definition used in this review. Considering the few “real ” QOL questionnaires, we conclude that there is a strong need for such instruments. © 2007 Movement Disorder Society

Url:
DOI: 10.1002/mds.21539


Affiliations:


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<div type="abstract" xml:lang="en">The aim of this study is to appraise the suitability of current quality of life (QOL) questionnaires for use in the field of Parkinson's disease (PD). Computerized bibliographic databases were screened for publications from 1960 to December 2006. Predefined selection criteria were used to identify QOL questionnaires in PD studies. Two investigators independently assessed and, subsequently, agreed on a set of multidimensional generic and PD‐specific QOL questionnaires. Data were extracted concerning the internal structure, reliability, validity, and responsiveness of the included questionnaires. Sixteen‐questionnaires were found, of which 14 questionnaires were included (six generic measures and eight PD‐specific). In general, the psychometrics of all the questionnaires were adequately described. Sensitivity to change, however, has been reported for only a limited number of instruments. Almost all included questionnaires used QOL as a keyword, but only two questionnaires fitted the broad QOL definition used in this review. Considering the few “real ” QOL questionnaires, we conclude that there is a strong need for such instruments. © 2007 Movement Disorder Society</div>
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